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Robin Powers

@robinpowers

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Cofounder RareABILITY& Soapingforacure.comany.site get clean & support 🦓💜🎗10 percent% goes back into the rare community 🦓💜🎗Mission and vision: The DeVine 9- 🦓"Smart, Strong, Resilient, Selfless, Caring, Charismatic, Reliable, Inspiring, & Purposeful" 🦓Public Advocate 🎗💜Orphan Disease, Chronic Illness💜🎗  🦓Years of Advocating: 18 🦓Rare Diseases: 💜🎗HEDS, CML, cluster headaches, narcolepsy, mixed connective tissue Disease, peripheral neuropathy, MCTD, central pain syndrome, CSRP Kalmanns syndrome.. and more. 🦓Majors: Biochemistry of rare disease B.S. 2020 🦓💜🎗Multidisciplinary  individualized M.S candidate 20201 at SUNY Buffalo State