Jerry Williams
@myositissupport
512
friends
He/Him/His - I am living with the rare disease dermatomyositis and the Founder and Former President now serving as the Chief Heart Officer of Myositis Support and Understanding Association (MSU), a patient-centered, patient-led, all-volunteer, fast growing nonprofit working to improve the lives of and empower ALL impacted by myositis. π ππ» See the MSU Linktree in my instagram bio. β€οΈ I lead and interact with love, compassion, and empathy. We all have struggles in life, letβs band together and be kind to one another. ππ» Annual Myositis Empower Walk, in person and livestream. In loving memory of Robert Landman, created by his family to support the work of MSU www.MyositisEmpowerWalk.org π After a 3+ year battle to get a correct diagnosis, it finally happened in 2005. Pain and muscle weakness are my biggest challenges at the moment, along with depression. Currently using a walking stick, and during flares I often have to use a walker (rollator) or wheelchair. π¦ I am currently in remission from Myelofibrosis. π³οΈβπ I am married to my husband Charlie, and we have two dachshunds, Dapper and Fergie, our kids! πΎ π I am a web designer but that is not my passion. My passion is helping others, patient empowerment, and inclusion, diversity and equity in the rare and myositis communities, and community-based advocacy. π¦ Myositis is a general term for the group of rare, systemic autoimmune diseases called Inflammatory Myopathies. These include - dermatomyositis - antisynthetase syndrome - polymyositis - immune-mediated necrotizing myopathy - sporadic inclusion body myositis - juvenile myositis π If you are living with or caring for someone with myositis please join MSU. You are not alone! Visit www.understandingmyositis.org Visit MSU on other platforms: MSU on Instagram, @Myositis Facebook - @understandingmyositis And our website www.UnderstandingMyositis.org π π¦ π¦ ππ» Check out our new Myositis Support Club, just for those living with myositis and care partners too! Much love! Remember, smile!