He/Him/His - I am living with the rare disease dermatomyositis and the Founder and Former President now serving as the Chief Heart Officer of Myositis Support and Understanding Association (MSU), a patient-centered, patient-led, all-volunteer, fast growing nonprofit working to improve the lives of and empower ALL impacted by myositis. 💙 👉🏻 See the MSU Linktree in my instagram bio. ❤️ I lead and interact with love, compassion, and empathy. We all have struggles in life, let’s band together and be kind to one another. 🌈 After a 3+ year battle to get a correct diagnosis, it finally happened in 2005. Pain and muscle weakness are my biggest challenges at the moment, along with depression. Currently using a walking stick, and during flares I often have to use a walker (rollator) or wheelchair. 🦋 I am currently in remission from Myelofibrosis. 🏳️‍🌈 I am married to my husband Charlie, and we have two dachshunds, Dapper and Fergie, our kids! 🐾 🌈 I am a web designer but that is not my passion. My passion is helping others, patient empowerment, and inclusion, diversity and equity in the rare and myositis communities, and community-based advocacy. 🦓 Myositis is a general term for the group of rare, systemic autoimmune diseases called Inflammatory Myopathies. These include - dermatomyositis - antisynthetase syndrome - polymyositis - immune-mediated necrotizing myopathy - sporadic inclusion body myositis - juvenile myositis 💙 If you are living with or caring for someone with myositis please join MSU. You are not alone! Visit www.understandingmyositis.org Visit MSU on other platforms: MSU on Instagram, @Myositis Facebook - @understandingmyositis And our website www.UnderstandingMyositis.org 💙 🦋 🦓 👉🏻 Check out our new Myositis Support Club, just for those living with myositis and care partners too! Much love! Remember, smile!